For
those who do not have a chronic illness like fibromyalgia, I am going
to share eight extraordinary things about people with fibromyalgia that
you need to know. May this list encourage you to understand their plight
and their incredible passion to live despite their struggling. May it
open a new perspective for you to consider. May it help you understand
what they endure. May it inspire you to appreciate the people in your
life who have fibromyalgia — and tell them how much you admire them.
1. People with fibromyalgia have a profound strength to manage life while in pain.
They
have a relentless will to live, so they must dive deep into their
reservoir of strength to mine more of it every single day they are faced
with the challenges of their pain. They don’t give up, despite the
debilitating symptoms they experience. They push through and grab hold
of what they can to find fulfillment in every day. This type of
endurance and perseverance proves to be an ongoing battle that can
result in profound fortitude.
2. People with fibromyalgia tend to have an astute awareness of other people’s pain.
Because
they have endured their own difficult road of affliction, they may be
more in tune to the people around them. They can have extraordinary
empathy and compassion for others and a deep understanding of adversity
and hardship, so they can truly appreciate someone else’s struggles.
When someone is hurting, they are often the first to respond and console
because they know the significance of having support.
3. People with fibromyalgia may have a unique perspective on life.
They
are constantly challenged to find meaning and fulfillment within their
own limitations, and they may celebrate simple things that others take
for granted. They can have an exceptional admiration for life
experiences, because they often live within the confines of their
captivity — unable to live an active life. They may learn to look for
the gifts in every day with great vigilance.
4. People with fibromyalgia often don’t tell people when they are struggling.
Because
they are sick so often, they may not want to burden others regularly.
They might struggle alone because they hate to make people feel
uncomfortable or obligated in any way. Many times, you might notice they
disappear for a time – they could miss regular events, social
activities, or friends and family gatherings. This is often when they
are trying to manage their symptoms and are too sick to do much else.
Their disappearance sometimes goes unnoticed. This is quite possibly the
hardest part of being chronically ill. They desperately want to join
you.
5. People with fibromyalgia live a secret life of struggling.
They
may not look sick at all, but underneath their appearance there is a
person fighting fiercely to be well. They may fall apart as soon as they
get home, after keeping the facade for hours wherever they were. They
may have taken enough medicine just to get them through the day. They
may mask their pain with smiles so others won’t notice their struggling.
They likely don’t want to be seen as sick all the time, so they may try
hard to present themselves as “OK”… and often, they are not.
6. People with fibromyalgia need you to check on them.
They
often feel uncomfortable reaching out for help or support because they
may feel people have more important things to do. Many are sure people
are tired of hearing about their sickness/disease, so they stop telling
their family and friends about their struggles. They hate what they are
enduring, and wish things were different.
Reach out to them and assure them you are not tired of hearing about their struggles (and genuinely mean it). Ask them how you can help them, would you?
7. People with fibromyalgia can fail to follow through on commitments.
While
they want so desperately to live a full life connecting with others and
showing up when they say they will, people with chronic illness
don’t have the privilege of knowing how they will feel each and every
day.
They may wish they could be more predictable, but their illness
controls the outcome. If they fail you, please understand that they are
more disappointed than you could ever be. They have to live with the
anguish of letting you down on top of the physical pain they endure. All
they have is hopeful intention and often it is met with utter defeat.
Reach out to them and tell them you absolutely understand and ask to reschedule for when they are feeling better, would you?
8. People with fibromyalgia need to know they are loved unconditionally, because you cannot place conditions on them.
While
most of the world and the people in it operate on performance and
productivity, many people who have chronic illness cannot measure their
worth in this way. Some days, they may feel they are of no value because
they couldn’t do anything productive besides manage their illness. They
can feel useless and insignificant to the world around them. They must
learn to love themselves without expectations, and you must, too.
Reach out to them and tell them how valuable they are, just as they are, would you?
People
who endure long-suffering are in all of our lives. Let’s make sure we
walk alongside them with the love and support they deserve.
Reference:http://www.haleyourself.com/8-extraordinary-things-need-know-people-fibromyalgia/
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