A growing body of data is showing CBD, the active ingredient in medical
marijuana, is a powerfully effective medicine for children suffering
rare seizure disorders
Winding through the lush valleys of Pennsylvania the Allegheny,
Monongahela, and Ohio rivers flow. At their confluence is the city of
three rivers: Pittsburgh.
Long-dubbed "Steel City," Pittsburgh’s
industrial landscape has evolved since the heyday of the steel mills.
These days, Pittsburgh’s 1,600 technology firms are helping redefine the
town, generating $20.7 billion in annual payrolls. Now, Pittsburgh is gradually growing to be a notable player in the cannabis research space, as well.
Pittsburgh and cannabis.
On April 17, 2016, Pennsylvania’s governor signed a medical marijuana program
into law, making it the 24th state permitting medical cannabis
distribution. Part of the law includes a publicly funded, state-run
research program to study marijuana’s effectiveness in treating 17
medical conditions.
The Pittsburgh School of Medicine researched and announced
that male subjects who consumed cannabis between the ages of 15 and 26
were “not at a heightened risk for maladjustment in adulthood,”
dispelling a long-held myth. Another University of Pittsburgh study was first to assert that smoking marijuana has little or no adverse health effects.
It was fitting, then, that the World Medical Cannabis Conference and Expo
(WMCCE) was held in the city of Pittsburgh the 21st and 22nd of April.
With fewer pot leaves but more MDs, the conference delivered a
refreshing perspective of the cannabis plant. Recreational users
sometimes forget that cannabis heals - which was WMCCE’s uniform theme.
Sanjay Gupta,
chief medical correspondent for CNN, was the first to enlighten me
about the health benefits of cannabis as I and millions of others
watched his about-face on the plant,
declaring, “We have been terribly and systematically misled for nearly
70 years in the United States, and I apologize for my own role in that.”
What
happened in Pittsburgh this April weekend was a wave of other doctors
congregating to further peel away at the marijuana's stigma to see what
lies beneath.
They found miracles. Every triumph over disease is
universally glorious but is even more powerfully affecting when those
afflicted are children and their families are sitting right in front of
you. On stage at WMCCE were three real-life, unique and compelling cases
of miraculous results through cannabis CBD treatment.
Lillyann Baker
At
seven weeks old, Lillyann Baker suffered a traumatic brain injury that
progressed into severe epilepsy. Her days were filled with seizures.
“She'd have maybe an hour break, then go right back into another one,"
her mother Cassandra Stephan explained.
Epilepsy is not one
specific disease, but rather a group of symptoms that are manifestations
of any number of conditions involving over stimulation of nerve cells
of the brain. A cell signaling activity affects the nervous system and
causes muscle spasms.
Prescription drugs like Eslicarbazepine
(Aptiom), Felbamate (Felbatol), Carbamazepine (Carbatrol or Tegretol)
are typically used to treat these conditions but don’t always work. That
was certainly true for Lillyann.
Seizure medicines had no effect
on her, so after lots of research and consideration, her mom tried a
high concentration hemp oil instead. It took six months and five
different types of hemp oils, but Lillyann finally had the reaction the
family wanted with the discovery of Real Scientific Hemp Oil™ (RHSO) CBD
concentrates produced by HempMeds.
“The electric properties of hemp are responsible for seizure
reduction,” HempMeds CEO Dr. Stuart Titus told me in our interview.
As of February 2017, Lillyann will be seizure-free for an entire year.
“What
Lillyann takes, I would not change for the world,” Stephan told the
WMCCE audience. “Doctors are the ones with the licenses, but mommy and
daddy saved you.”
Harper Howard
Harper
Howard was born with a rare genetic disorder called CDKL5 which causes
uncontrollable seizures -- 40, or more, per day. Again,
conventional medicine didn't work for Harper, who at one point was
taking with a combination of 10 medicines. Penny Howard, Harper's mom,
sought other solutions.
Things changed for Harper in 2013 when
Dr. Gupta broadcast his aforementioned cannabis series. There they were.
Penny saw stories of children like her Harper successfully treated with
cannabis CBD. She found RHSO and saw results after two weeks. The CBD
treatment eliminated Harper's seizures and gave her and her family an
entirely different quality of life.
Harper died in January 2016,
but her legacy lives on. Her family has donated her organs to medical
research. Today Harper's cells are being used to test the effectiveness
of treatments for autism and CDKL5.
"Harper has taken on a new
form," her mother told the attentive conference audience. "We're all
just parents, searching for a better quality of life for our children.
Cannabis is an option. Hemp is an option."
Grace Elizalde
Sitting
across from Raul Elizalde, I quickly learned I was in the company of a
Mexican national hero. His daughter Grace was born with a rare condition
called Lennox Gastaut Syndrome (LGS), a
rare and often debilitating form of childhood-onset epilepsy. LGS is
characterized by a triad of signs including multiple seizure types
and moderate to severe cognitive impairment. It is among the most
difficult forms of epilepsy to treat.
With Grace suffering
nearly 400 seizures a day, Elizalde and his physician tried 19 medicines
and even brain surgery to contain the seizures. Having that many
seizures a day is not living a life, Raul told me. Once again, nothing
worked to treat the condition until RHSO CBD.
But in Mexico,
cannabis CBD is illegal. So, accompanied by his physician, Elizalde sued
the Mexican government for the rights to use the plant extract. Six
months later, he'd won. The case became a watershed moment for cannabis
advocates, spurring Mexican President Enrique Pena Nieto to reverse his
long-standing position on cannabis legalization.
The Mexican
government went on to begin granting permits allowing other patients to
import medicinal marijuana products, and also decriminalized possession
of small amounts of marijuana. The domino Elizalde knocked through
another milestone on April 28th, 2017 as the lower house of the Mexican
Parliament (by a margin on 374-7) passed a bill permitting growing marijuana for medicinal or scientific purposes.
"It
is immoral not to give something to a patient that can help them heal,"
Elizalde told me. Indeed, it's a disservice to the advancement of
science, as well, and the World Medical Cannabis Conference and Expo did
a fine job of reinforcing that point.
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